Tuesday, April 9, 2013

Frustrating

I got all anxious about this meeting with Dr. Carpenter, the triplet specialist, today and then it got canceled.  Darn.  M and I were on the conference line for about 50 minutes before Dr. Carpenter's medical assistant called and said he'd been called to an emergency.  Which I understand.  But it's still frustrating.  We are rescheduled to tomorrow at 4:00.

The good thing is M had prepared for the call too, and read through all the information Dr. Carpenter gave us, plus another (more recent) study I'd sent him.  So we had a long time to talk about our own feelings about the materials and the (flawed?) statistics.  It's a lot to take in.  M's main concern is having children that have lifelong disabilities, because they were born too early.  "Too early" is probably the 24-28 week range, and that's where the stats don't seem to agree.  The literature review Dr. C. gave us says 8% are born in that range, but his summary table says 15-17%.  Big difference!

It's very difficult for me to look at this totally objectively.  I strongly believe everything is going to be ok.  Exceptionally difficult (on me), yes.  But I think these babies are in for the long, healthy haul.

No comments:

Post a Comment